Resources

CENTERS FOR MEDICARE & MEDICAID SERVICES (CMS)

CAHPS Hospice Survey (https://www.hospicecahpssurvey.org)

Health Equity (https://www.cms.gov/pillar/health-equity)

Hospice Center (https://www.cms.gov/center/provider-type/hospice-center)

Hospice Quality Reporting Program (https://www.cms.gov/medicare/quality-initiatives-patient-assessment-instruments/hospice-quality-reporting)

Medicare Benefit Policy Manual—Chapter 9: “Coverage of Hospice Services Under Hospital Insurance” (https://www.cms.gov/Regulations-and-Guidance/Guidance/Manuals/Downloads/bp102c09.pdf)

Medicare Claims Processing Manual—Chapter 11: “Processing Hospice Claims” (https://www.cms.gov/Regulations-and-Guidance/Guidance/Manuals/Downloads/clm104c11.pdf)

Medicare Coverage Database—Hospice Local Coverage Determinations (https://www.cms.gov/medicare-coverage-database/search-results.aspx?keyword=Hospice&keywordType=starts&areaId=all&docType=NCA,CAL,NCD,MEDCAC,TA,MCD,6,3,5,1,F,P&contractOption=all)

State Operations Manual—Chapter 2: “The Certification Process” (https://www.cms.gov/Regulations-and-Guidance/Guidance/Manuals/downloads/som107c02.pdf)

State Operations Manual—Appendix M: “Guidance to Surveyors: Hospice” (https://www.cms.gov/Regulations-and-Guidance/Guidance/Manuals/downloads/som107ap_m_hospice.pdf)

State Operations Manual—Appendix Z: “Emergency Preparedness for All Provider and Certified Supplier Types Interpretive Guidance” (https://www.cms.gov/Regulations-and-Guidance/Guidance/Manuals/downloads/som107ap_z_emergprep.pdf)

TRADE ORGANIZATIONS

American Academy of Hospice and Palliative Medicine (https://aahpm.org)

Center to Advance Palliative Care (https://www.capc.org)

Hospice and Palliative Care Nursing Association (https://advancingexpertcare.org)

National Association for Home Care and Hospice (https://www.nahc.org)

National Hospice and Palliative Care Organization (https://www.nhpco.org)

National Partnership for Healthcare and Hospice Innovation (https://www.hospiceinnovations.org)

World Health Organization (https://www.who.int)

STATE HOSPICE ORGANIZATIONS

A list of state hospice organizations is available at: https://hospicefoundation.org/Hospice-Directory

PEDIATRIC HOSPICE RESOURCES

Center to Advance Palliative Care Toolkit—Pediatric Palliative Care Delivery (https://www.capc.org/toolkits/designing-a-pediatric-palliative-care-program)

The Conversation Project—For Caregivers of a Child with Serious Illness—Additional Resources (https://theconversationproject.org/pediatric-additional-resources)

Free pediatric palliative care resources (https://marrelli.com/free-pediatric-palliative-care-resources)

National Coalition for Hospice and Palliative Care—Pediatric Palliative Care Curricula and Resources (https://www.nationalcoalitionhpc.org/wp-content/uploads/2021/03/PPC-Trainings-Resources-Curricula-Guide.pdf)

BOOKS

Allen, N. E. (2021). Survivor! Ten Practical Steps to Survey Survival. (www.solutionsforcare.com)

Marrelli, T. M. (2017). A Guide for Caregiving: What’s Next? Planning for Safety, Quality, and Compassionate Care for Your Loved One and Yourself! Innovative Caregiving Solutions. (www.marrelli.com)

Marrelli, T. M. (2018). The Handbook of Home Health Standards: Quality, Documentation, and Reimbursement, 6th ed. Mosby. (www.marrelli.com)

Marrelli, T. M. (2020). Home Health Aide: Guidelines for Care: Instructor Manual, 3rd ed. Marrelli and Associates. (www.marrelli.com)

McGoldrick, M. (2023). Home Care Infection Prevention and Control Program Manual. Home Health Systems. (www.homecareandhospice.com)

OTHER RESOURCES

Aging with Dignity (https://agingwithdignity.org)

ECOG Performance Status Scale (https://ecog-acrin.org/resources/ecog-performance-status)

End of Life Palliative Education Resource Center—Palliative Care Fast Facts and Concepts (https://www.mypcnow.org/fast-facts)

Five Wishes (https://www.fivewishes.org/five-wishes-sample.pdf)

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