Appendix B: Resources for Clinicians and Patient/Caregiver Education

ALZHEIMER’S DISEASE

• Caregiver Resources from alzheimers.gov: http://www.alzheimers.gov/caregiver_resources.html

• Caring for Someone from alzheimers.gov: http://www.alzheimers.gov/caring.html

• About Alzheimer’s Disease: Symptoms, from the National Institute on Aging: http://www.nia.nih.gov/alzheimers/topics/symptoms

• Alzheimer’s Disease, from the Centers for Disease Control and Prevention: http://www.cdc.gov/aging/aginginfo/alzheimers.htm

• Home Safety for People with Alzheimer’s Disease, from the National Institute on Aging: http://www.nia.nih.gov/sites/default/files/home_safety_for_people_with_alzheimers_disease.pdf

• Alzheimer’s: When to Stop Driving, from the Mayo Clinic: http://www.mayoclinic.org/healthy-living/caregivers/in-depth/alzheimers/art-20044924

• The Alzheimer’s Association offers brochures and other resources for professionals and families; includes information on getting the right diagnosis and a 24/7 helpline: www.alz.org; 1-800-272-3900

AMPUTATION

• Lower Extremity Amputation Prevention (LEAP): http://www.hrsa.gov/hansensdisease/leap/

• The U.S. Department of Veterans Affairs offers information on their Rehabilitation and Prosthetic Services page: http://www.prosthetics.va.gov

• The Amputee Coalition offers information for on amputations and support groups: http://www.amputee-coalition.org/

• MedlinePlus offers a foot amputation discharge information page, including self-care guidelines: http://www.nlm.nih.gov/medlineplus/ency/patientinstructions/000013.htm

• The National Amputation Foundation offers information and support: www.nationalamputation.org; 1-516-887-3600

ARTHRITIS

• The American Academy of Orthopaedic Surgeons offers resources and information related to arthritis: www.aaos.org

• The Arthritis Foundation offers information about different types of arthritis as well as tips for eating well and staying active on its website: http://www.arthritis.org/; 1-800-283-7800

• The Arthritis Foundation publishes the Arthritis Today magazine: http://www.arthritis.org/arthritis-today-magazine/

• The Arthritis Foundation also offers a resource specifically for caregivers: http://www.arthritistoday.org/what-you-can-do/everyday-solutions/caregiving/

• The National Institute of Arthritis and Musculoskeletal and Skin Diseases offers an information page about rheumatoid arthritis in particular: http://www.niams.nih.gov/health_info/rheumatic_disease/rheumatoid_arthritis_ff.asp; 1-877-226-4267

• The Centers for Disease Control and Prevention (CDC) offers resources including basic information about arthritis: http://www.cdc.gov/arthritis

• MedlinePlus offers information about arthritis, including common types and treatment options: http://www.nlm.nih.gov/medlineplus/ency/article/001243.htm

CANCER

• Caring for the Caregiver from the National Cancer Institute: http://www.cancer.gov/publications/patient-education/caring-for-the-caregiver

• Complementary and Alternative Medicine from the National Cancer Institute: http://www.cancer.gov/cancertopics/cam

• Cancer Treatment from the National Cancer Institute: http://www.cancer.gov/cancertopics/treatment

• Organizations and Resources from the National Cancer Institute for adolescents and young adults: http://www.cancer.gov/cancertopics/aya/resources

• Coping with Cancer from the National Cancer Institute: http://www.cancer.gov/cancertopics/coping

• The American Cancer Society offers support groups such as “I Can Cope” and “Look Good … Feel Better” for women undergoing chemotherapy or radiation. It also offers resources and information on various cancers for patients, families, and professionals: www.cancer.org

• The Oncology Nursing Society offers a “Breast Cancer Patient Resource Area” and links to organizations and journals to help patients: www.ons.org

• Cancer Care offers information for those dealing with cancer—patients, family members, friends, and health professionals providing care: www.cancercare.org; 1-800-813-HOPE (4673)

• The Oral Cancer Foundation: http://oralcancer.org/

CARDIAC CARE

• The American Heart Association offers professional and patient resources: www.americanheart.org; 1-800-AHA-USA1 (8721)

• The National Heart, Lung, and Blood Institute offers information about heart failure (what it is, the signs and symptoms, treatment options, how it is diagnosed, etc.): www.nhlbi.nih.gov; 1-301-592-8573

• Get Moving: Easy Tips to Get Active!, from the American Heart Association: http://www.heart.org/HEARTORG/HealthyLiving/PhysicalActivity/GettingActive/Get-Moving-Easy-Tips-to-Get-Active_UCM_307978_Article.jsp#.V18uNPkrLIU

CAREGIVERS

• Caregiver Resources, ...